Taxation of Special Needs Trusts: Navigating Grantor Status, Reporting, and Eligibility Impacts

Elder Law | Aug 8, 2025 | Andrew H. “Andy” Hook

Special Needs Trusts (SNTs) are vital tools for preserving public benefits eligibility while managing financial resources for individuals with disabilities. However, their taxation is nuanced and often misunderstood. This article explores the tax treatment of self-settled (first-party) and third-party SNTs, the implications of grantor trust status, and the responsibilities of trustees in reporting income.


1. Self-Settled Special Needs Trusts: Always Grantor Trusts

A self-settled SNT, funded with the beneficiary’s own assets (e.g., personal injury settlements or inheritances), is always a grantor trust under federal tax law [1]. This classification is not optional or subject to drafting finesse—it is inherent due to the beneficiary’s ownership and control over the assets.

Tax Identification and Reporting

  • Trustees may use the beneficiary’s Social Security Number (SSN) as the trust’s Taxpayer Identification Number (TIN), which simplifies reporting.
  • Alternatively, trustees may obtain an Employer Identification Number (EIN) and file an informational Form 1041 with a Grantor Trust Information Letter, detailing income and deductions taxable to the beneficiary [2].

Why Grantor Status Matters

Grantor trust status ensures that all income, deductions, and credits are reported on the beneficiary’s personal tax return. This avoids the steep tax rates applied to non-grantor trusts and aligns with the trust’s purpose of supporting the beneficiary without disrupting benefits eligibility [3].


2. Third-Party Special Needs Trusts: Usually Non-Grantor

A third-party SNT, funded by someone other than the beneficiary (typically a parent or grandparent), is usually a non-grantor trust. It is never a grantor trust as to the beneficiary, though it may be a grantor trust as to the actual grantor if the trust is revocable or includes retained powers [1].

Tax Reporting and K-1s

  • If the trust is non-grantor, it must file Form 1041 and issue Schedule K-1s to beneficiaries for any income distributed [3].
  • Distributions carry out income to the beneficiary, regardless of whether the income is in cash or in-kind (e.g., paying for a wheelchair or rent). This is not discretionary; it is mandated by tax law [1].

Trustee Responsibilities

Trustees must not ignore K-1 requirements. Failure to issue K-1s can lead to IRS penalties and misreporting. Trustees who avoid issuing K-1s to protect benefits eligibility misunderstand both tax law and public benefits rules [2].


3. Income Definitions: Tax vs. Benefits Eligibility

There is a critical distinction between “income” for tax purposes and “income” for public benefits like Medicaid or SSI. While the IRS may treat a distribution as taxable income, Medicaid may not count it as income if it’s paid directly to a vendor (e.g., rent or medical bills) [4].

Navigating Eligibility Workers

Most SSA eligibility workers now understand this distinction, but local Medicaid workers may not. Trustees and advocates often need to educate caseworkers, who may lack training and oversight [1].


4. Ethical Considerations for Trustees

Trustees must act with integrity. Avoiding income reporting to protect benefits—or to help a beneficiary evade obligations like child support—is unethical. Trustees must treat public benefits eligibility with the same seriousness as any other legal obligation [1].


5. Pooled Trusts: Same Tax Rules, More Complexity

Pooled SNTs, managed by nonprofit organizations, must use an EIN. Each sub-account may be treated as a grantor or non-grantor trust, requiring individual tax filings and potentially multiple Form 1041s [2].


6. Advanced Considerations and Drafting Pitfalls

Attempting to Avoid Grantor Status

While it is theoretically possible to draft a self-settled SNT that avoids grantor trust status (e.g., by limiting distributions to under 5% of principal), doing so is impractical and counterproductive. It increases the tax burden and limits the trust’s utility [1].

IRC §§671–676 Powers

Including powers like asset substitution to force grantor trust status is unnecessary and may confuse Medicaid workers. Simpler structures are more effective and less likely to trigger eligibility issues [1].


7. MAGI Medicaid and Grantor Trust Income

In rare cases, grantor trust income may affect Modified Adjusted Gross Income (MAGI) Medicaid eligibility. However, most beneficiaries do not earn enough to be impacted. If they do, they may qualify for subsidized coverage through the ACA exchange [1].


Conclusion

Taxation of Special Needs Trusts is complex but manageable with proper understanding and ethical administration. Trustees must:

  • Recognize the inherent grantor status of self-settled trusts.
  • Comply with IRS reporting requirements, including issuing K-1s.
  • Understand and explain the difference between taxable income and benefits income.
  • Avoid drafting gimmicks that complicate eligibility or increase tax burdens.

By adhering to these principles, trustees can ensure compliance, protect beneficiaries, and uphold he integrity of the trust.


References

[1] Special Needs Trust Taxation: What You Need to Know

[2] Filing a Tax Return for a Special Needs Trust – SNA

[3] Taxation Guide for First and Third-Party Special Needs Trusts

[4] Special / Supplemental Needs Trusts & Medicaid Eligibility for Seniors

Andy

Andrew H. “Andy” Hook

Chairman, Board of Directors
757-399-7506 | 252-722-2890
ahook@hooklaw.net

After leading the firm for over 30 years, Andrew H. “Andy” Hook transitioned to Chairman of the Board of Directors in 2025. An accomplished attorney elected into the Virginia Lawyers Hall of Fame in 2021, Andy continues to enjoy a long and highly respected legal career practicing in estate and trust administration, elder law, estate planning, tax, retirement, business succession, special needs planning, long-term care, and asset protection planning. As Chairman of the Board, Andy focuses on the firm’s future while ensuring the same level of exceptional client service he has provided throughout his career. While Andy continues to serve his clients at the highest level, he is also focusing his attention on mentoring and developing the rest of Hook Law’s attorneys and paralegals to ensure consistency and continuity of the Hook Law experience for current and future clients alike. 

A 1975 graduate of the University of Virginia’s School of Law, Andy is a Fellow of the American College of Trust and Estate Counsel (ACTEC) and the National Academy of Elder Law Attorneys (NAELA). He is also certified as an Elder Law Attorney (CELA) by the National Elder Law Foundation, a CERTIFIED FINANCIAL PLANNER™ (CFP®), Accredited Estate Planner® (AEP®), and an accredited attorney for the preparation, presentation, and prosecution of claims for veteran benefits before the Department of Veterans Affairs. Andy is a former President of the Special Needs Alliance, a nationwide network of disability attorneys, a former Director of NAELA, and a former editor-in-chief of the NAELA Journal.

Andy resides in Virginia Beach, Virginia with his wife, Maureen. Outside of his legal practice, he enjoys exploring emerging technologies and sharing his extensive legal expertise with colleagues and peers.

Practice Areas

  • Elder Law
  • Estate & Trust Administration
  • Estate Planning
  • Asset Protection Planning
  • Long-Term Care Planning
  • Special Needs Planning
  • Financial Planning
  • Personal Injury Settlement Consulting
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